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The Cure Sickle Cell Initiative (CureSCi)
Funded by the National Heart, Lung, and Blood Institute (NHLBI)
Engages the sickle cell disease community
Aims to improve the lives of people with sickle cell and find a path to cures
The CureSCi MetaData Catalog Features
Aggregates study variables into a 3-tiered structure of concept categories
Enables effective metadata browsing and searches at both study and data element levels
Finds what data are available within and across the curated studies
The CureSCi MetaData Catalog Applications
A public tool to find the study data information before going through data request procedures to access controlled datasets
Makes sickle cell disease datasets more Findable for data sharing and reuse
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