Metadata Catalog
Natural History Data Resource

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Report: Number of PRO Measures by Study

Concept Category Functional Exercise Capacity Mental Health Neurodevelopment Neuropsychological Pain Physical Exam Psychosocial Quality of Care Quality of Life Sleep Technology Support
CSSCD 1 2 7 2
walk-PHaSST 1 1 5
SAC
SIT Trial 1 1
SCDIC Registry 10 1 1 5 1 2 1
HCT for SCD
SCCRIP
STOP I and II
MSH 1 2
(SC)2 1 1
SCDAA
DISPLACE
OMG-SCD
PharmHU
REDS-BSCDC
PUSH_SCD
Boston Brazil SCD
Baby HUG 2 2 1 2
BMT CTN - UD HCT for cSCD-0601 4 3 1
CSCC-C-Data 1 1
SCDIC mESH 3 1 1
SCDIC ALIGN
CSCC-Arginine
CSCC-Dexamethasone
CSCC-HU-Mg
CSCC-Neuropsych 1 2 5 1
CSCC-Priapism
CIP
GE-SCD-iPS
ASCQ-Me