Metadata Catalog
Natural History Data Resource

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Report: Number of Data Elements by Study

Study Clinical status COVID-19 Demographics Environmental Exposure Health Care Imaging Parent/ Caretaker Quality of Life Tests Therapeutics
CSSCD 1637 594 5 67 364 124 381 2478 503
walk-PHaSST 416 29 15 71 33 114 360 269
SAC 350 8 32 11 22 1 103 166
SIT Trial 679 54 3 11 23 26 236 125
SCDIC Registry 405 57 41 43 144 27 136 144
HCT for SCD 2 5 1 19 128
SCCRIP 38 12 5 8 2 34 18
STOP I and II 632 4 3 2 294 279 215
MSH 185 39 2 10 71 49 160 147
(SC)2 182 25 68 9 109 37
SCDAA 4 3 11 1 4 15
DISPLACE 41 6 2 38 2 18 73
OMG-SCD 2 2 23 1
PharmHU 3 3 1
REDS-BSCDC 1 5 1
PUSH_SCD 18 5 5 38 3
Boston Brazil SCD 6 1 8 1
Baby HUG 758 33 45 237 37 175 301 119
BMT CTN - UD HCT for cSCD-0601 459 4 23 16 14 123 80 172
CSCC-C-Data 336 34 69 40 2 141 39 57
SCDIC mESH 14 18 172 9 83 73
SCDIC ALIGN 13 5 114 20
CSCC-Arginine 63 4 19 34 313 29
CSCC-Dexamethasone 146 13 29 8 113 103
CSCC-HU-Mg 46 3 1 1 338 21
CSCC-Neuropsych 512 15 13 26 111 45
CSCC-Priapism 114 12 4 8 23 14
CIP 2 2 1
GE-SCD-iPS 4 1