| Study | Clinical status | Demographics | Environmental Exposure | Health Care | Imaging | Parent/ Caretaker | Quality of Life | Tests | Therapeutics |
|---|---|---|---|---|---|---|---|---|---|
| CSSCD | 1637 | 594 | 5 | 67 | 364 | 124 | 381 | 2478 | 503 |
| walk-PHaSST | 416 | 29 | 15 | 71 | 33 | 114 | 360 | 269 | |
| SAC | 350 | 8 | 32 | 11 | 22 | 1 | 103 | 166 | |
| SIT Trial | 679 | 54 | 3 | 11 | 23 | 26 | 236 | 125 | |
| SCDIC Registry | 288 | 21 | 25 | 57 | 9 | 126 | 80 | ||
| HCT for SCD | 2 | 5 | 1 | 19 | 128 | ||||
| SCCRIP | 38 | 12 | 5 | 8 | 2 | 34 | 18 | ||
| STOP I and II | 632 | 4 | 3 | 2 | 294 | 279 | 215 | ||
| MSH | 185 | 39 | 2 | 10 | 71 | 49 | 160 | 147 | |
| (SC)2 | 182 | 25 | 68 | 9 | 109 | 37 | |||
| SCDAA | 4 | 3 | 11 | 1 | 4 | 15 | |||
| DISPLACE | 41 | 6 | 2 | 38 | 2 | 18 | 73 | ||
| OMG-SCD | 2 | 2 | 23 | 1 | |||||
| PharmHU | 3 | 3 | 1 | ||||||
| REDS-BSCDC | 1 | 5 | 1 | ||||||
| PUSH_SCD | 18 | 5 | 5 | 38 | 3 | ||||
| Boston Brazil SCD | 6 | 1 | 8 | 1 | |||||
| Baby HUG | 758 | 33 | 45 | 237 | 37 | 175 | 301 | 119 | |
| BMT CTN - UD HCT for cSCD-0601 | 459 | 4 | 23 | 16 | 14 | 123 | 80 | 172 | |
| CSCC-C-Data | 336 | 34 | 69 | 40 | 2 | 141 | 39 | 57 | |
| SCDIC mESH | 14 | 18 | 172 | 9 | 83 | 73 |