The Cure Sickle Cell Initiative
- Funded by the National Heart, Lung, and Blood Institute (NHLBI)
- Engages the sickle cell disease community
- Aims to improve the lives of people with sickle cell and find a path to cures
The CureSCi MetaData Catalog Features
- Aggregates study variables into a 3-tiered structure of concept categories
- Enables effective metadata browsing and searches at both study and data element levels
- Finds what data are available within and across the curated studies
The CureSCi MetaData Catalog Applications
- A public tool to find the study data information before going through data request procedures to access controlled datasets
- Makes sickle cell disease datasets more Findable for data sharing and reuse
Studies by Design
(16)
(16)
Number of Subjects
(20,533)
(20,533)
Study Variables
(10,454)
(10,454)
Concept Category
(11)
(11)
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No. of Study (16), by Study Design
No. Variables, by Concept Category
No. Subjects, by Study
No. Variables, by Study
