The Cure Sickle Cell Initiative
- Funded by the National Heart, Lung, and Blood Institute (NHLBI)
- Engages the sickle cell disease community
- Aims to improve the lives of people with sickle cell and find a path to cures
The CureSCi MetaData Catalog Features
- Aggregates study variables into a 3-tiered structure of concept categories
- Enables effective metadata browsing and searches at both study and data element levels
- Finds what data are available within and across the curated studies
The CureSCi MetaData Catalog Applications
- A public tool to find the study data information before going through data request procedures to access controlled datasets
- Makes sickle cell disease datasets more Findable for data sharing and reuse
Studies by Design
(12)
(12)
Number of Subjects
(15,940)
(15,940)
Study Variables
(6,918)
(6,918)
Data Element Categories
(9)
(9)
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No. of Study (12), by Study Design
No. Variables, by Concept Category
No. Subjects, by Study
No. Variables, by Study
