The Cure Sickle Cell Initiative
- Funded by the National Heart, Lung, and Blood Institute (NHLBI)
- Engages the sickle cell disease community
- Aims to improve the lives of people with sickle cell and find a path to cures
The CureSCi MetaData Catalog Features
- Aggregates study variables into a 3-tiered structure of concept categories
- Enables effective metadata browsing and searches at both study and data element levels
- Finds what data are available within and across the curated studies
The CureSCi MetaData Catalog Applications
- A public tool to find the study data information before going through data request procedures to access controlled datasets
- Makes sickle cell disease datasets more Findable for data sharing and reuse
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Studies by Design 20 |
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Number of Subjects 31,610 |
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Study Variables 16,341 |
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Concept Category 9 |
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No. of Study, by Study Design
No. Variables, by Concept Category
No. Subjects, by Study
No. Variables, by Study
