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Browse Studies

StudyID Name Acronym StudyPI Data Location Genomic Data No. Participants Data Element Curation
1001 Cooperative Study of Sickle Cell Disease CSSCD Multiple PI's BioLINCC, dbGaP, BioData Catalyst Yes 4085 Complete
1002 Treatment of Pulmonary Hypertension and Sickle Cell Disease With Sildenafil Therapy walk-PHaSST Mark T. Gladwin BioLINCC, BioData Catalyst No 720 Complete
1003 Sleep and Asthma Cohort (SAC) Study SAC Michael R. DeBaun Vanderbilt University Medical Center No 243 Complete
1004 Silent Cerebral Infarct Transfusion Multi-Center Clinical Trial SIT Trial Michael R. DeBaun Vanderbilt University Medical Center No 196 Complete
1005 Sickle Cell Disease Implementation Consortium Registry SCDIC Registry Barbara Kroner RTI International No 2436 Complete
1006 Hematopoietic Cell Transplant for Sickle Cell Disease HCT for SCD Mary M. Horowitz BioLINCC, BioData Catalyst No 1518 Complete
1007 Sickle Cell Clinical Research and Intervention Program SCCRIP Jane S. Hankins St. Jude Children's Research Hospital No 1084 Complete
1008 Stroke Prevention in Sickle Cell Anemia STOP I and II Robert Adams, Donald Brambilla BioLINCC, BioData Catalyst No 150 Complete
1009 Multicenter Study of Hydroxyurea in Patients With Sickle Cell Anemia MSH Samuel Charache, Michael Terrin BioLINCC, BioData Catalyst No 299 Complete
1010 South Carolina Sickle Cell Disease Access to Care Pilot Program (SC)2 Julie Kanter MUSC No 500 Complete
1011 SCDAA - Get Connected Registry SCDAA Kim Smith Whitley SCDAA No 5000 Complete
1012 Dissemination and Implementation of Stroke Prevention Looking at the Care Environment DISPLACE Julie Kanter UAB No 5247 Complete
1013 Outcome Modifying Genes in Sickle Cell Disease OMG-SCD Allison Ashley-Koch, Marilyn Telen dbGaP Yes 642 Complete
1014 The Pharmacogenomics of Hydroxyurea in Sickle Cell Disease PharmHU Vivien Sheehan dbGaP Yes 740 Complete
1015 Recipient Epidemiology and Donor Evaluation Study REDS-BSCDC Brian Custer dbGaP Yes 2795 Complete
1016 Howard University Center for Sickle Cell Disease Study PUSH_SCD Sergei Nekhai dbGaP Yes 432 Complete
1017 Boston Brazil SCD Boston Brazil SCD Vijay Sankaran dbGaP Yes 943 Complete
1018 Hydroxyurea to Prevent Organ Damage in Children With Sickle Cell Anemia Baby HUG Multiple PI's BioLINCC No 193 Complete
1019 Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Unrelated Donor Reduced Intensity Bone Marrow Transplant for Children With Severe Sickle Cell Disease (0601) BMT CTN - UD HCT for cSCD-0601 Mary Horowitz BioLINCC No 30 Complete
1020 Comprehensive Sickle Cell Centers' (CSCC) C-Data Project CSCC-C-Data Susi Lieff RTI International No 3640 Complete
1021 Integrating m-Health into SCD Care to Increase Hydroxyurea Utilization SCDIC mESH Jane Hankins RTI International No 293 Complete
1022 Improving ED Care Using Individualized Pain Plans SCDIC ALIGN Paula Tanabe RTI International No 277 Complete
1023 Comprehensive Sickle Cell Centers' (CSCC) -Arginine Supplementation in Sickle Cell Anemia: Physiological and Prophylactic Effects CSCC-Arginine Lori Styles RTI International No 128 In Queue
1024 Comprehensive Sickle Cell Centers' (CSCC) -Dexamethasone CSCC-Dexamethasone Charles Quinn RTI International No 12 Complete
1025 Comprehensive Sickle Cell Centers' (CSCC) -HU-Mg CSCC-HU-Mg Winfred Wang RTI International Yes 44 In Queue
1026 Comprehensive Sickle Cell Centers' (CSCC) -Neuropsych CSCC-Neuropsych Elliott Vichinsky RTI International No 212 In Queue
1027 Comprehensive Sickle Cell Centers' (CSCC) -Priapism CSCC-Priapism Zora Rogers RTI International No 1464 In Queue