|
Cooperative Study of Sickle Cell Disease
|
CSSCD
|
BioLINCC, dbGaP, BioData Catalyst
|
Yes
|
4085
|
|
Treatment of Pulmonary Hypertension and Sickle Cell Disease With Sildenafil Therapy
|
walk-PHaSST
|
BioLINCC, BioData Catalyst
|
No
|
720
|
|
Sleep and Asthma Cohort (SAC) Study
|
SAC
|
Vanderbilt University Medical Center
|
No
|
243
|
|
Silent Cerebral Infarct Transfusion Multi-Center Clinical Trial
|
SIT Trial
|
Vanderbilt University Medical Center
|
No
|
196
|
|
Sickle Cell Disease Implementation Consortium Registry
|
SCDIC Registry
|
BioData Catalyst
|
No
|
2436
|
|
Hematopoietic Cell Transplant for Sickle Cell Disease
|
HCT for SCD
|
BioLINCC, BioData Catalyst
|
No
|
1518
|
|
Sickle Cell Clinical Research and Intervention Program
|
SCCRIP
|
St. Jude Children's Research Hospital
|
No
|
1084
|
|
Stroke Prevention in Sickle Cell Anemia
|
STOP I and II
|
BioLINCC, BioData Catalyst
|
No
|
150
|
|
Multicenter Study of Hydroxyurea in Patients With Sickle Cell Anemia
|
MSH
|
BioLINCC, BioData Catalyst
|
No
|
299
|
|
South Carolina Sickle Cell Disease Access to Care Pilot Program
|
(SC)2
|
MUSC
|
No
|
500
|
|
SCDAA - Get Connected Registry
|
SCDAA
|
SCDAA
|
No
|
5000
|
|
Dissemination and Implementation of Stroke Prevention Looking at the Care Environment
|
DISPLACE
|
UAB
|
No
|
5247
|
|
Outcome Modifying Genes in Sickle Cell Disease
|
OMG-SCD
|
dbGaP, BioData Catalyst
|
Yes
|
642
|
|
The Pharmacogenomics of Hydroxyurea in Sickle Cell Disease
|
PharmHU
|
dbGaP, BioData Catalyst
|
Yes
|
740
|
|
Recipient Epidemiology and Donor Evaluation Study
|
REDS-BSCDC
|
dbGaP, BioData Catalyst
|
Yes
|
2795
|
|
Howard University Center for Sickle Cell Disease Study
|
PUSH_SCD
|
dbGaP, BioData Catalyst
|
Yes
|
432
|
|
Boston Brazil SCD
|
Boston Brazil SCD
|
dbGaP, BioData Catalyst
|
Yes
|
943
|
|
Hydroxyurea to Prevent Organ Damage in Children With Sickle Cell Anemia
|
Baby HUG
|
BioLINCC, BioData Catalyst
|
No
|
193
|
|
Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Unrelated Donor Reduced Intensity Bone Marrow Transplant for Children With Severe Sickle Cell Disease (0601)
|
BMT CTN - UD HCT for cSCD-0601
|
BioLINCC, BioData Catalyst
|
No
|
30
|
|
Comprehensive Sickle Cell Centers' (CSCC) C-Data Project
|
CSCC-C-Data
|
RTI International
|
No
|
3640
|
|
Integrating m-Health into SCD Care to Increase Hydroxyurea Utilization
|
SCDIC mESH
|
RTI International
|
No
|
293
|
|
Improving ED Care Using Individualized Pain Plans
|
SCDIC ALIGN
|
RTI International
|
No
|
277
|
|
Comprehensive Sickle Cell Centers' (CSCC) -Arginine Supplementation in Sickle Cell Anemia: Physiological and Prophylactic Effects
|
CSCC-Arginine
|
RTI International
|
No
|
128
|
|
Comprehensive Sickle Cell Centers' (CSCC) -Dexamethasone
|
CSCC-Dexamethasone
|
RTI International
|
No
|
12
|
|
Comprehensive Sickle Cell Centers' (CSCC) -HU-Mg
|
CSCC-HU-Mg
|
RTI International
|
No
|
44
|
|
Comprehensive Sickle Cell Centers' (CSCC) -Neuropsych
|
CSCC-Neuropsych
|
RTI International
|
No
|
212
|
|
Comprehensive Sickle Cell Centers' (CSCC) -Priapism
|
CSCC-Priapism
|
RTI International
|
No
|
1464
|
|
CIP: Differential Response to Hydroxyurea and Incidence of Stroke in Sickle Cell Disease
|
CIP
|
dbGaP
|
Yes
|
651
|
|
NextGen Consortium: Globin Gene Expression in Sickle Cell Genotype-Specific iPS Cells
|
GE-SCD-iPS
|
dbGaP
|
Yes
|
55
|
|
Adult Sickle Cell Quality of Life Measurement Information System Field Test
|
ASCQ-Me
|
Harvard Dataverse
|
No
|
561
|