|
1001
|
Cooperative Study of Sickle Cell Disease
|
CSSCD
|
Multiple PI's
|
BioLINCC, dbGaP, BioData Catalyst
|
Yes
|
4085
|
Complete
|
|
1002
|
Treatment of Pulmonary Hypertension and Sickle Cell Disease With Sildenafil Therapy
|
walk-PHaSST
|
Mark T. Gladwin
|
BioLINCC, BioData Catalyst
|
No
|
720
|
Complete
|
|
1003
|
Sleep and Asthma Cohort (SAC) Study
|
SAC
|
Michael R. DeBaun
|
Vanderbilt University Medical Center
|
No
|
243
|
Complete
|
|
1004
|
Silent Cerebral Infarct Transfusion Multi-Center Clinical Trial
|
SIT Trial
|
Michael R. DeBaun
|
Vanderbilt University Medical Center
|
No
|
196
|
Complete
|
|
1005
|
Sickle Cell Disease Implementation Consortium Registry
|
SCDIC Registry
|
Barbara Kroner
|
BioData Catalyst
|
No
|
2436
|
Complete
|
|
1006
|
Hematopoietic Cell Transplant for Sickle Cell Disease
|
HCT for SCD
|
Mary M. Horowitz
|
BioLINCC, BioData Catalyst
|
No
|
1518
|
Complete
|
|
1007
|
Sickle Cell Clinical Research and Intervention Program
|
SCCRIP
|
Jane S. Hankins
|
St. Jude Children's Research Hospital
|
No
|
1084
|
Complete
|
|
1008
|
Stroke Prevention in Sickle Cell Anemia
|
STOP I and II
|
Robert Adams, Donald Brambilla
|
BioLINCC, BioData Catalyst
|
No
|
150
|
Complete
|
|
1009
|
Multicenter Study of Hydroxyurea in Patients With Sickle Cell Anemia
|
MSH
|
Samuel Charache, Michael Terrin
|
BioLINCC, BioData Catalyst
|
No
|
299
|
Complete
|
|
1010
|
South Carolina Sickle Cell Disease Access to Care Pilot Program
|
(SC)2
|
Julie Kanter
|
MUSC
|
No
|
500
|
Complete
|
|
1011
|
SCDAA - Get Connected Registry
|
SCDAA
|
Kim Smith Whitley
|
SCDAA
|
No
|
5000
|
Complete
|
|
1012
|
Dissemination and Implementation of Stroke Prevention Looking at the Care Environment
|
DISPLACE
|
Julie Kanter
|
UAB
|
No
|
5247
|
Complete
|
|
1013
|
Outcome Modifying Genes in Sickle Cell Disease
|
OMG-SCD
|
Allison Ashley-Koch, Marilyn Telen
|
dbGaP, BioData Catalyst
|
Yes
|
642
|
Complete
|
|
1014
|
The Pharmacogenomics of Hydroxyurea in Sickle Cell Disease
|
PharmHU
|
Vivien Sheehan
|
dbGaP, BioData Catalyst
|
Yes
|
740
|
Complete
|
|
1015
|
Recipient Epidemiology and Donor Evaluation Study
|
REDS-BSCDC
|
Brian Custer
|
dbGaP, BioData Catalyst
|
Yes
|
2795
|
Complete
|
|
1016
|
Howard University Center for Sickle Cell Disease Study
|
PUSH_SCD
|
Sergei Nekhai
|
dbGaP, BioData Catalyst
|
Yes
|
432
|
Complete
|
|
1017
|
Boston Brazil SCD
|
Boston Brazil SCD
|
Vijay Sankaran
|
dbGaP, BioData Catalyst
|
Yes
|
943
|
Complete
|
|
1018
|
Hydroxyurea to Prevent Organ Damage in Children With Sickle Cell Anemia
|
Baby HUG
|
Multiple PI's
|
BioLINCC, BioData Catalyst
|
No
|
193
|
Complete
|
|
1019
|
Blood and Marrow Transplant Clinical Trials Network (BMT CTN) Unrelated Donor Reduced Intensity Bone Marrow Transplant for Children With Severe Sickle Cell Disease (0601)
|
BMT CTN - UD HCT for cSCD-0601
|
Mary Horowitz
|
BioLINCC, BioData Catalyst
|
No
|
30
|
Complete
|
|
1020
|
Comprehensive Sickle Cell Centers' (CSCC) C-Data Project
|
CSCC-C-Data
|
Susi Lieff
|
RTI International
|
No
|
3640
|
Complete
|
|
1021
|
Integrating m-Health into SCD Care to Increase Hydroxyurea Utilization
|
SCDIC mESH
|
Jane Hankins
|
RTI International
|
No
|
293
|
Complete
|
|
1022
|
Improving ED Care Using Individualized Pain Plans
|
SCDIC ALIGN
|
Paula Tanabe
|
RTI International
|
No
|
277
|
Complete
|
|
1023
|
Comprehensive Sickle Cell Centers' (CSCC) -Arginine Supplementation in Sickle Cell Anemia: Physiological and Prophylactic Effects
|
CSCC-Arginine
|
Lori Styles
|
RTI International
|
No
|
128
|
Complete
|
|
1024
|
Comprehensive Sickle Cell Centers' (CSCC) -Dexamethasone
|
CSCC-Dexamethasone
|
Charles Quinn
|
RTI International
|
No
|
12
|
Complete
|
|
1025
|
Comprehensive Sickle Cell Centers' (CSCC) -HU-Mg
|
CSCC-HU-Mg
|
Winfred Wang
|
RTI International
|
Yes
|
44
|
Complete
|
|
1026
|
Comprehensive Sickle Cell Centers' (CSCC) -Neuropsych
|
CSCC-Neuropsych
|
Elliott Vichinsky
|
RTI International
|
No
|
212
|
Complete
|
|
1027
|
Comprehensive Sickle Cell Centers' (CSCC) -Priapism
|
CSCC-Priapism
|
Zora Rogers
|
RTI International
|
No
|
1464
|
Complete
|
|
1028
|
CIP: Differential Response to Hydroxyurea and Incidence of Stroke in Sickle Cell Disease
|
CIP
|
Richard Gibbs
|
dbGaP
|
Yes
|
651
|
Complete
|
|
1029
|
NextGen Consortium: Globin Gene Expression in Sickle Cell Genotype-Specific iPS Cells
|
GE-SCD-iPS
|
Martin Steinberg
|
dbGaP
|
Yes
|
55
|
Complete
|
|
1030
|
Adult Sickle Cell Quality of Life Measurement Information System Field Test
|
ASCQ-Me
|
San Keller
|
Harvard Dataverse
|
No
|
561
|
Complete
|