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Study Detail

Study ID 1006
Name Hematopoietic Cell Transplant for Sickle Cell Disease
Contact Email meapen@mcw.edu
Acronym HCT for SCD
Period ongoing
Design Registry of patients that have undergone blood and marrow transplant
Study PI Mary M. Horowitz
Institution Medical College of Wisconsin
URL https://www.cibmtr.org/Studies/Pages/index.aspx
CTGovID https://clinicaltrials.gov/ct2/show/NCT01166009
Funding Agency NHLBI
Grant Number 1U01HL128568-01
Overview The data provided by CIBMTR represents patients who underwent first allogenic HCT (Hemopoetic stem Cell Transplant) for Sickle Cell Disease in the US up to 2017 and reported to the CIBMTR
Focus Areas 1. Acute graft versus host disease (grade II-IV)
2. Chronic graft versus host disease
3. Secondary malignancy
Outcomes 1. Overall Survival
2. Event-free survival (graft failure or death as event)
3. Neutophil engraftment
4. Platelet Recovery
Data Location BioLINCC, BioData Catalyst
Biospecimen Available N/A
Data Consent Consented data may be shared, check individual consent form for specific subject type (donor, recipient, adult, minor, autologous, allogeneic)
Biospecimen Consent Consented samples may be shared, check individual consent form for specific subject type (donor, recipient, adult, minor, autologous, allogeneic).
Contact Consent Yes, with permission on consent
Genomic Data No
Age Range 0-99
No. Participants 1518
Inclusion Criteria 1. First Allogeneic HCT
2. Sickle Cell Disease indication
3. Conducted in USA only
Exclusion Criteria 1. Cases where consent for use in research is not provided
2. Cases where no follow up data was provided
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