Overview

The Metadata Catalog (MDC) was designed to be a resource for curation of data elements and study documentation for past and current studies of sickle cell disease populations. The CureSCi MDC provides a web-based public tool to help investigators answer the following questions when designing a new study or when doing a secondary data analysis:

• What data elements were collected by the studies?
• Which data elements are common among studies?
• Are the common data comparable for cross-study analyses?
• What are the number of participants for selected data elements? (a future development)

The MDC has dozens of searchable fields for study-level metadata (e.g., study design, inclusion/exclusion criteria, outcomes) and several tools to enable users to:

• Browse individual studies.
• Browse multiple studies by data element.
• Search study metadata by keyword.
• Search data elements by concept.

Viewing the MDC is critical before initiating a request to the controlled SCD data repository.