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Overview
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(SC)2 is designed to use collective impact methodology to harness the current efforts of the sickle cell disease (SCD) stakeholders to create disease-specific medical homes for individuals living with SCD in South Carolina.The goals are to enhance access to care for affected individuals, educate local providers to develop knowledge and self-efficacy in treating and managing SCD, and improve cost of care through increased quality of care.
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Focus Areas
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1. Enhanced access to disease modifying medication
2. Improving transfusion utilization
3. Increased evidence based screening and preventative care
4. Acute care utilization
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Outcomes
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1. Longitudinal biologic data collection including demographics, radiologic assessments, anthropomorphic and laboratory values to improve the understanding of sickle cell disease and the relationship of the environment on patient health and well-being.
2. Acute care information and prescription refill history will be collected in order to improve individual patients’ disease management and provide population health information for patients with sickle cell disease in South Carolina. This data will also be utilized for quality assessment of the (SC)² program and for quality improvement activities.
3. We will collect patient reported outcomes including previously validated pain reporting and quality of life tools to ensure patient satisfaction and input in the (SC)² program.
4. Utilize the ECHO model to improve the quality and quantity of knowledge of providers in providing care for individuals with sickle cell disease.
5. Each patient will receive a customized individual care plan including pain medication plan available to all treating providers to enhance patient-specific treatment.
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