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Study Detail

Study ID 1004
Name Silent Cerebral Infarct Transfusion Multi-Center Clinical Trial
Contact Email m.debaun@vumc.org
Acronym SIT Trial
Period 2004 - 2013
Design Clinical trial
Study PI Michael R. DeBaun
Institution Washington University School of Medicine
URL https://clinicaltrials.gov/ct2/show/NCT00072761
CTGovID https://clinicaltrials.gov/ct2/show/NCT00072761
Funding Agency NINDS
Grant Number 5U01NS042804-07
Overview The primary aim of this trial is to determine the effectiveness of blood transfusion therapy for the prevention of silent strokes in children with sickle cell anemia. This trial will also determine if blood transfusion therapy will prevent further cerebral injury and if the measured benefits of the therapy outweigh the risks associated with it.
Focus Areas 1. Changes in cognition, which were assessed bymeasurement of IQ scores with the Wechsler Abbreviated Scale of Intelligence12 or theWechsler Preschool and Primary Scale of Intelligence III
2. Scores on theBehavior Rating Inventory of Executive Function (BRIEF)
Outcomes Recurrence of infarct or hemorrhage as determined by neuroimaging, clinical evidence of permanent neurologic injury, or both. A new infarct had to meet the criteria for a silent cerebral infarction; an enlarged silent cerebral infarct was defined as a previously identified silent cerebral infarct that increased by at least 3 mm alongany linear dimension in any plane on MRI. A transient ischemic attack (TIA), which wasincluded in secondary analyses of neurologic outcomes, was defined as an event thatresulted in focal neurologic deficits that lasted less than 24 hours, did not result inabnormalities on T2-weighted or FLAIR images that were indicative of an acute infarct, andhad no other reasonable medical explanation.
Data Location Vanderbilt University Medical Center
Biospecimen Available Blood; Urine;
Data Consent Research team will only use and share information discussed in consent form, de-identified.
Biospecimen Consent By agreeing to participate, you authorize the use of your tissue for research that may benefit others.
Contact Consent NA
Genomic Data No
Age Range 0-99
No. Participants 196
Inclusion Criteria 1. Patient must have sickle cell anemia (hemoglobin SS) or sickle ß thalassemia (hemoglobin Sß-thal) as confirmed at the local institution by hemoglobin analysis after six months of age.
2. Patient must be 5 through 14 years of age (i.e., must have attained their 5th, but not their 15th birthday).
3. Informed consent with assent in accordance with the institutional policies (institutional IRB approval) and Federal guidelines (approved by the United States Department of Health and Human Services) must be signed by the patient's legally authorized guardian acknowledging written consent to join the study.
4. Patient must have a silent cerebral infarct defined as a silent cerebral infarct like lesion on the study screening MRI based on consensus of opinion of two of three members of the neuroradiology committee and normal neurologic examination or a focal neurologic examination where the abnormality is inconsistent with neuroanatomical location. The neurologic examination will be done by the site neurologist and adjudicated by the neurology committee.
Exclusion Criteria 1. Patient with a history of a focal neurologic event lasting more than 24 hours with medical documentation or a history of prior overt stroke.
2. Patient with other neurological problems, such as neurofibromatosis, lead poisoning, non-febrile seizure disorder, or tuberous sclerosis.
3. Patient with HIV infection.
4. Pregnancy or lactating females.
5. Patient who received treatment with anti-sickling drugs or hydroxyurea within 3 months or anticipate receiving anti sickling drugs or hydroxyurea during the course of the study.
6. Patients on chronic blood transfusion therapy for other reasons.
7. Patient judged not likely to be compliant by his/her hematologist and study coordinator based on previous compliance in clinic appointments and following advice.
8. Patient unable to receive blood transfusion because of alloimmunization.
9. Patients who have or anticipate receiving permanent (or semi-permanent) metallic structures attached to their body. (e.g., braces on teeth, body piercings), which their physicians believe will interfere with the MRI of the head
10. Patients with any person living in the same household who have been randomly assigned in the SIT Trial.
11. Patients who have more than two standard care TCD studies with a TAMMV equal to or = 200 cm/sec by the non-imaging technique, or TAMX or equivalent =185 cm/sec for the imaging technique or a TCD that is indeterminate
12. Patients who have one standard care TCD study with a TAMMV equal to = 200 cm/sec by the non-imaging technique, or TAMX or equivalent =185 cm/sec for the imaging technique AND one standard care TCD study that is indeterminate
13. Patients whose pre-randomization MRI (2nd MRI immediately prior to randomization) show progressive silent infarct lesion
14. Patients with abnormal kidney function (creatinine > 2x upper limit of normal).
Study Documentation
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Silent_Cerebral_Infarct_Transfusion_Trial_Manual_Procedures
Forms
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Data ElementVariables
Acute Anemic Episode
Aplastic Crisis sit020_parvovirus
sit020_parvovirusyr
sit021_parvovirus
sit021_parvovirusyr
Bleeding
Other Blood Problem
Sickle Cell Disease SCD_DIAG
SCD_TYPE
sit000_hassicklecell
sit021_sicklediag
sit130_hassicklecell13
Data ElementVariables
Aneurysm
Cardiac Failure
Cardiovascular Problem
Heart Problem sit181_cardiac
sit181_cardiacnote
Data ElementVariables
Gastrointestinal Problem sit020_bileductobstr
sit021_bileductobstr
sit181_gi
sit181_ginote
Hepatitis
Liver Problem
Data ElementVariables
Diabetes Mellitus
Endocrine Problem sit181_endocrine
sit181_endocrinenote
Data ElementVariables
Family MedHx sit020_asthma1-6
sit020_hemgeno1-6
sit020_momsicklecell
sit020_momsickletype
sit020_otherfamheadache
sit020_otherfammigraine
sit021_asthma1-6
sit021_hemgeno1-6
sit021_momsicklecell
sit021_momsickletype
sit021_otherfamheadache
sit021_otherfammigraine
sit2a0_otherfamheadache
sit2a0_otherfammigraine
sit2a0_recurheadache
Data ElementVariables
Genitourinary Problem sit020_uti
sit020_utinumb
sit021_uti
sit021_utinumb
sit181_gu
sit181_gunote
Kidney Problem sit130_abnormalkidney
Priapism sit020_priapism
sit020_priapismduration
sit021_priapism
sit021_priapismduration
Renal Dialysis History
Data ElementVariables
Fever
HIV Infection sit000_hashiv
sit130_hashiv13
Immune Problem
Infection sit020_salminfec
sit020_salminfecyr
sit021_salminfec
sit021_salminfecyr
Vaccination sit020_fluvaccine
sit020_fluvaccineyr
sit020_haemophilusb
sit020_haemophilusbyr
sit020_hepa
sit020_hepatst
sit020_hepatstyr
sit020_hepayr
sit020_hepb
sit020_hepbcoretst
sit020_hepbcoretstyr
sit020_hepbtst
sit020_hepbtstyr
sit020_hepbyr
sit020_hepctst
sit020_hepctstyr
sit020_hivtst
sit020_hivtstyr
sit020_meningoa
sit020_meningoayr
sit020_meningoc
sit020_meningocyr
sit020_pneumo
sit020_pneumoyr
sit020_prevnar
sit020_prevnaryr
sit021_fluvaccine
sit021_fluvaccineyr
sit021_haemophilusb
sit021_haemophilusbyr
sit021_hepa
sit021_hepatst
sit021_hepatstyr
sit021_hepayr
sit021_hepb
sit021_hepbcoretst
sit021_hepbcoretstyr
sit021_hepbtst
sit021_hepbtstyr
sit021_hepbyr
sit021_hepctst
sit021_hepctstyr
sit021_hivtst
sit021_hivtstyr
sit021_meningoa
sit021_meningoayr
sit021_meningoc
sit021_meningocyr
sit021_pneumo
sit021_pneumoyr
sit021_prevnar
sit021_prevnaryr
sit2a0_hepatst
sit2a0_hepatstyr
sit2a0_hepatstyrna
sit2a0_hepbcoretst
sit2a0_hepbcoretstyr
sit2a0_hepbcoretstyrna
sit2a0_hepbtst
sit2a0_hepbtstyr
sit2a0_hepbtstyrna
sit2a0_hepctst
sit2a0_hepctstyr
sit2a0_hepctstyrna
sit2a0_hivtst
sit2a0_hivtstyr
sit2a0_hivtstyrna
Data ElementVariables
Sarcoidosis
Spleen Problem sit020_splenic
sit020_splenicage
sit020_splenicnumb
sit021_splene
sit021_spleneyr
sit021_splenic
sit021_splenicage
sit021_splenicnumb
Data ElementVariables
Adverse event sit170_ae
Death sit020_dadalive
sit020_dadcod
sit020_daddob
sit020_daddobuk
sit020_daddodyr
sit020_dadsicklecell
sit020_dadsickletype
sit020_momalive
sit020_momcod
sit020_momdodyr
sit021_dadalive
sit021_dadcod
sit021_daddob
sit021_daddobuk
sit021_daddodyr
sit021_dadsicklecell
sit021_dadsickletype
sit021_momalive
sit021_momcod
sit021_momdodyr
Disability Status
Hospitalization
Medical Event
Serious Adverse Event sit170_sae
Data ElementVariables
Medical History sit200_eventtype
sit200_medevents
sit200_otherevent
Data ElementVariables
Anxiety
Depression
Emotional Health
Mental status sit181_mentalcurr
sit181_mentalexpl
Psychiatric Disorder
Data ElementVariables
Musculoskeletal Problem sit181_muscular
sit181_muscularnote
Osteomyelitis
Osteonecrosis sit020_avasnecrosis
sit020_avasnecrosisloc
sit021_avasnecrosis
sit021_avasnecrosisloc
Rheumatic Diseases
Data ElementVariables
Behavior sit221_bri22
sit221_control22
sit221_gec22
sit221_inconsistency22
sit221_inhibit22
sit221_initiate22
sit221_memory22
sit221_mi22
sit221_monitor22
sit221_negativity22
sit221_organization22
sit221_plan22
sit221_shift22
Cognition sit101_abcons
sit101_agecomp
sit101_agename
sit101_ageorient
sit101_ageread
sit101_agerep
sit101_agewrite
sit101_altcons
sit101_altconsdet
sit101_ball
sit101_bicycle
sit101_blackcat
sit101_cat
sit101_clock
sit101_closeeyes
sit101_cogbehavdef
sit101_cogbehavdefobv
sit101_dogrun
sit101_inside
sit101_langdefcomp
sit101_langdefcompobv
sit101_langdefprod
sit101_langdefprodobv
sit101_lefthand
sit101_levelofcons
sit101_necomp
sit101_nename
sit101_neorient
sit101_neread
sit101_nerep
sit101_newrite
sit101_outdoors
sit101_pencil
sit101_pointfloor
sit101_righthand
sit101_shirt
sit101_signature
sit101_skateboard
sit101_stopgo
sit101_stopread
sit101_stoprep
sit101_totalcomp
sit101_totalname
sit101_totalorient
sit101_totalread
sit101_totalrep
sit101_totalwrite
sit101_touchnose
sit101_wash
sit170_cantexpress
sit170_cantunderstand
sit200_cooperative
sit200_distractions
sit200_focused
sit200_leastenjoy
sit200_mostenjoy
sit200_motivated
sit200_notvalid
sit200_pace
sit200_understand
sit200_valid
sit200_whichinvalid
sit200_whyinvalid
sit200_whyvalid
sit210_block21
sit210_matrix21
sit210_similarities21
sit210_vocab21
Developmental sit020_completegrade
sit020_currengrade
sit020_grade1
sit020_grade2
sit020_grade3
sit020_grade4
sit020_grade504
sit020_iepgrade
sit020_iepinplace
sit020_inplace504
sit020_numb1
sit020_numb2
sit020_numb3
sit020_numb4
sit020_repeatgrade
sit020_specialattn
sit021_completegrade
sit021_currengrade
sit021_grade1
sit021_grade2
sit021_grade3
sit021_grade4
sit021_grade504
sit021_iepgrade
sit021_iepinplace
sit021_inplace504
sit021_numb1
sit021_numb2
sit021_numb3
sit021_numb4
sit021_repeatgrade
sit021_specialattn
sit200_attention
sit200_classtype
sit200_gradecurr
sit200_graderepeated
sit200_repeatgrade20
sit280_c504
sit280_daysmissed
sit280_everfail
sit280_failmed
sit280_failnotlearn
sit280_grade
sit280_gradefailed
sit280_iep
sit280_meddays
sit280_passlast
sit280_specialed
sit280_testname
sit280_testscore
sit2a0_completegrade
sit2a0_currengrade
sit2a0_grade1
sit2a0_grade2
sit2a0_grade3
sit2a0_grade4
sit2a0_grade504
sit2a0_iepgrade
sit2a0_iepinplace
sit2a0_inplace504
sit2a0_numb1
sit2a0_numb2
sit2a0_numb3
sit2a0_numb4
sit2a0_repeatgrade
sit2a0_specialattn
Motor sit101_abcoord
sit101_abmove
sit101_abmove2
sit101_abmovedet
sit101_agedraw
sit101_circle
sit101_clumsy
sit101_clumsydet
sit101_cross
sit101_gait10
sit101_lanklej
sit101_larmataxia
sit101_larmdist
sit101_larmmotor
sit101_larmprox
sit101_lbicepj
sit101_lbrach
sit101_lfootbal
sit101_lfoothop
sit101_lhandfine
sit101_lines
sit101_lkneej
sit101_llegataxia
sit101_llegdist
sit101_llegmotor
sit101_llegprox
sit101_lplantar
sit101_ltricepj
sit101_nedraw
sit101_noteval
sit101_ranklej
sit101_rarmataxia
sit101_rarmdist
sit101_rarmmotor
sit101_rarmprox
sit101_rbicepj
sit101_rbrach
sit101_rfootbal
sit101_rfoothop
sit101_rhandfine
sit101_rkneej
sit101_rlegataxia
sit101_rlegdist
sit101_rlegmotor
sit101_rlegprox
sit101_rplantar
sit101_rtricepj
sit101_totaldraw
sit101_triangle
sit101_walkheel
sit101_walktip
sit101_whichfootheel
sit101_whichfoottip
sit181_motorcurr
sit181_motorexpl
sit200_listneeds
sit200_specialneeds
Sensation sit101_abgag
sit101_abhearing
sit101_abpalate
sit101_abtonguestr
sit101_abtrapstr
sit101_corneal
sit101_cornealdet
sit101_dysarthria10
sit101_facesense
sit101_facesensedet
sit101_gag
sit101_gaze
sit101_gazedet
sit101_hearing
sit101_larmlt
sit101_larmpp
sit101_larmpro
sit101_larmvib
sit101_lfacelt
sit101_lfacepp
sit101_lleglt
sit101_llegpp
sit101_llegpro
sit101_llegvib
sit101_ltlowface
sit101_ltlowfacewk
sit101_ltrunklt
sit101_ltrunkpp
sit101_ltupface
sit101_ltupfacewk
sit101_oculardet
sit101_ocularmove
sit101_othervision
sit101_palate
sit101_papilledema
sit101_pupils
sit101_pupilsdet
sit101_rarmlt
sit101_rarmpp
sit101_rarmpro
sit101_rarmvib
sit101_rfacelt
sit101_rfacepp
sit101_rleglt
sit101_rlegpp
sit101_rlegpro
sit101_rlegvib
sit101_rtlowface
sit101_rtlowfacewk
sit101_rtrunklt
sit101_rtrunkpp
sit101_rtupface
sit101_rtupfacewk
sit101_sensdefl
sit101_sensdefobv
sit101_sensdefr
sit101_sensnoteval
sit101_tonguestr
sit101_trapstr
sit101_vision
Data ElementVariables
Meningitis sit020_bacmeningitis
sit020_bacmeningitisyr
sit020_meningmeningitis
sit020_meningmeningitisyr
sit020_nonbacmeningitis
sit020_nonbacmeningitisyr
sit020_pneummeningitis
sit020_pneummeningitisyr
sit021_bacmeningitis
sit021_bacmeningitisyr
sit021_meningmeningitis
sit021_meningmeningitisyr
sit021_nonbacmeningitis
sit021_nonbacmeningitisyr
sit021_pneummeningitis
sit021_pneummeningitisyr
Neurologic Event sit000_hadneuroevent
sit000_hasneuroprob
sit101_altneurofunc
sit101_armleft
sit101_armlefth
sit101_armright
sit101_armrighth
sit101_describeother
sit101_eventdt
sit101_faceleft
sit101_facelefth
sit101_faceright
sit101_facerighth
sit101_legleft
sit101_leglefth
sit101_legright
sit101_legrighth
sit101_neuroexam
sit101_newtreatment
sit101_numbness
sit101_numbnessdet
sit101_othersymptoms
sit101_seedoc
sit101_seeevent
sit101_speechalt
sit101_speechaltdet
sit101_symptomsbefore
sit101_symptomslast
sit101_visionloss10
sit101_visionloss10det
sit101_weakness
sit101_weaknessdet
sit101_whattreatment
sit101_whosee
sit130_hadneuroevent13
sit130_hasneuroprob13
sit170_halfvisionloss
sit170_numb
sit170_visionloss
sit170_weak
sit181_neuro
sit181_neuronote
Seizure sit020_fever
sit020_otherfamseizure
sit020_pain
sit020_patientseizure
sit020_seizurerelation
sit021_fever
sit021_otherfamseizure
sit021_pain
sit021_patientseizure
sit021_seizurerelation
sit101_posseizure
sit101_posseizuredet
sit2a0_fever
sit2a0_otherfamseizure
sit2a0_pain
sit2a0_patientseizure
sit2a0_seizurerelation
Stroke sit020_mrireason
sit020_silentstroke
sit020_silentstrokeyr
sit021_mrireason
sit021_silentstroke
sit021_silentstrokeyr
sit101_describeill
sit130_hasinfarct
sit1a0_caudate_n
sit1a0_centrum_semiovale
sit1a0_cerebellum
sit1a0_comments
sit1a0_corona_radiate
sit1a0_cortex
sit1a0_dorsolateral
sit1a0_external_capsule
sit1a0_frontal
sit1a0_frontal_lobe
sit1a0_insula
sit1a0_int_cap_ant_limb
sit1a0_int_cap_genu
sit1a0_int_cap_post_limb
sit1a0_lentiform_n
sit1a0_lesion_no
sit1a0_lesion_no_list
sit1a0_medial
sit1a0_medulla_oblongata
sit1a0_midbrain
sit1a0_motor
sit1a0_occipital
sit1a0_occipital_lobe
sit1a0_orbitofrontal
sit1a0_pariental
sit1a0_pariental_lobe
sit1a0_pons
sit1a0_pre_fr_other
sit1a0_prefrontal
sit1a0_premotor
sit1a0_series_no
sit1a0_side_of_brain
sit1a0_slice_no
sit1a0_temporal
sit1a0_temporal_lobe
sit1a0_thalamus
sit1a0_uncertain
sit1a0_white_mat_other
Transient Ischemic Attack sit020_tia
sit021_tia
sit101_eventwas
sit101_wasstroke
sit590_descript2
sit590_descrpt1
sit590_tiaclass
Data ElementVariables
Ocular Problem sit181_eyes
sit181_eyesnote
Sickle Retinopathy
Data ElementVariables
Abdominal Pain
General Pain
Headache sit020_apnea
sit020_daysleep
sit020_fatigue
sit020_headachedur
sit020_headacheever
sit020_headacheloc
sit020_headachewhen
sit020_howlongheadache
sit020_lightsensitive
sit020_nausea
sit020_othersymp
sit020_othersympsp
sit020_recurheadache
sit020_visualsymp
sit020_visualsympsp
sit021_apnea
sit021_daysleep
sit021_fatigue
sit021_headachedur
sit021_headacheever
sit021_headacheloc
sit021_headachewhen
sit021_howlongheadache
sit021_lightsensitive
sit021_nausea
sit021_othersymp
sit021_othersympsp
sit021_recurheadache
sit021_visualsymp
sit021_visualsympsp
sit101_headache10
sit101_headache10
sit101_headache10det
sit101_headache10det
sit170_headache
sit2a0_apnea
sit2a0_daysleep
sit2a0_fatigue
sit2a0_headachedur
sit2a0_headacheever
sit2a0_headacheloc
sit2a0_headachewhen
sit2a0_howlongheadache
sit2a0_lightsensitive
sit2a0_nausea
sit2a0_othersymp
sit2a0_othersympsp
sit2a0_visualsymp
sit2a0_visualsympsp
Management sit020_erpain
sit020_erpainnum
sit020_hosppain
sit020_hosppainnum
sit021_erpain
sit021_erpainnum
sit021_hosppain
sit021_hosppainnum
sit170_hospforpain
Pain Attack sit101_episodetype
sit101_painalso
Skeletal and Joint Pain sit020_dactage
sit020_dactnumb
sit020_dactylitis
sit021_dactage
sit021_dactnumb
sit021_dactylitis
Data ElementVariables
Birth Outcome
Gestational Age sit021_agedays021
sit021_agewks021
Menstruation sit181_lastmensesdt
sit181_mensesna
Pregnancy sit000_ispregnant
sit130_ispregnant13
sit181_contraceptive
Reproductive Behavior sit181_sexactive
Data ElementVariables
Acute Chest Syndrome sit020_eracs
sit020_eracsnum
sit020_hospacs
sit020_hospacsnum
sit021_eracs
sit021_eracsnum
sit021_hospacs
sit021_hospacsnum
sit170_hospforacs
Asthma sit020_parentasthma
sit020_patientasthma
sit020_patientasthmanow
sit020_whichparentasthma
sit021_parentasthma
sit021_patientasthma
sit021_patientasthmanow
sit021_whichparentasthma
sit2a0_parentasthma
sit2a0_patientasthma
sit2a0_patientasthmanow
sit2a0_whichparentasthma
Lung Disease
Other Respiratory Problem sit181_ent
sit181_entnote
sit181_respiratory
sit181_respiratorynote
Data ElementVariables
Skin Problem sit181_skin
sit181_skinnote
Data ElementVariables
Sleep Problem sit200_hrssleep
Data ElementVariables
Cardiovascular
Digestive sit020_chole
sit020_choleyr
sit021_chole
sit021_choleyr
Genitourinary
Lymphatic sit020_splene
sit020_spleneyr
Musculoskeletal
Ocular
Respiratory sit020_tonsil
sit020_tonsilyr
sit021_tonsil
sit021_tonsilyr
Surgery History sit020_centralline
sit020_othersurg1-6
sit020_othersurg1-6yr
sit021_centralline
sit021_othersurg1
sit021_othersurg1yr
sit021_othersurg2
sit021_othersurg2yr
sit021_othersurg3
sit021_othersurg3yr
sit021_othersurg4
sit021_othersurg4yr
sit021_othersurg5
sit021_othersurg5yr
sit021_othersurg6
sit021_othersurg6yr
Data ElementVariables
Address
Age sit101_age10
Ethnic Group sit020_patientethnic
sit021_patientethnic
Gender sit020_patientgender
sit021_patientgender
sit101_gender10
sit210_gender21
sit221_gender22
Language sit020_englishfirst
sit020_englishfluent
sit020_otherlang
sit021_englishfirst
sit021_englishfluent
sit021_otherlang
sit200_otherlang20
sit200_primarylang
National Origin sit020_patientorigin
sit020_patientotherorigin
sit021_patientorigin
sit021_patientotherorigin
Nuclear Family sit020_gender1-6
sit020_havesibs
sit020_numsibs
sit020_samedad1-6
sit020_samemom1-6
sit021_gender1-6
sit021_havesibs
sit021_numsibs
sit021_samedad1-6
sit021_samemom1-6
Race sit020_patientotherrace
sit020_patientrace
sit021_patientotherrace
sit021_patientrace
Data ElementVariables
Annual Income sit020_famincome
sit021_famincome
Education sit020_hohdegree
sit021_hohdegree
Employment Status
Household sit020_older17
sit020_younger16
sit021_older17
sit021_younger16
Insurance sit020_govhealth
sit020_medicaid
sit020_noinsurance
sit020_private
sit021_govhealth
sit021_medicaid
sit021_noinsurance
sit021_private
sit2a0_govhealth
sit2a0_medicaid
sit2a0_noinsurance
sit2a0_private
Marital Status
Data ElementVariables
Exposure sit020_anyonesmoke
sit021_anyonesmoke
sit2a0_anyonesmoke
Lead Poisoning
Data ElementVariables
Final Diagnosis sit020_erasthma
sit020_erasthmanum
sit020_hospasthma
sit020_hospasthmanum
sit021_erasthma
sit021_erasthmanum
sit021_hospasthma
sit021_hospasthmanum
sit170_hospforasthma
sit170_hospforpriap
Hospitalization
ICU sit170_icuadmin
Data ElementVariables
Abdomen
Bone
Brain sit101_brainimage
sit101_imageresult
Chest
Data ElementVariables
Brain sit130_hasbraces13
sit130_newinfarct
sit000_hasbraces
Heart
Hip
Liver
Data ElementVariables
Brain sit051_notcomplete
sit051_scanincrement
sit051_tcdcomments
sit051_tcdcomplete
sit051_tcdcritmet
sit051_tcddt
sit051_tcdend
sit051_tcdimage
sit051_tcdnonimage
sit051_tcdresult
sit051_tcdstart
sit051_tcdtrans
sit051_tcdvelhilt
sit051_tcdvelhirt
sit051_tcdvellolt
sit051_tcdvellort
sit051_verincrement
sit130_failtcd
Data ElementVariables
Demographics sit020_fatherethnic
sit020_fatherorigin
sit020_fatherotherorigin
sit020_fatherotherrace
sit020_fatherrace
sit020_motherethnic
sit020_motherorigin
sit020_motherotherorigin
sit020_motherotherrace
sit020_motherrace
sit021_fatherethnic
sit021_fatherorigin
sit021_fatherotherorigin
sit021_fatherotherrace
sit021_fatherrace
sit021_motherethnic
sit021_motherorigin
sit021_motherotherorigin
sit021_motherotherrace
sit021_motherrace
Socioeconomic Status sit020_pcgmarried
sit021_pcgmarried
Data ElementVariables
Psychosocial
Relationship sit020_pcgotherrelation
sit020_pcgtopatient
sit021_pcgotherrelation
sit021_pcgtopatient
Data ElementVariables
Blood Differential Test sit020_bands
sit020_neutrophils
sit020_reticulocytes
sit020_reticulocytessi
sit020_reticunit
sit021_bands
sit021_neutrophils
sit021_reticulocytes021
sit021_reticulocytessi
sit021_reticunit
sit23_reticunit_cv
sit233_basophils
sit233_eosinophils
sit233_lympho
sit233_monocytes
sit233_neutro
sit233_reticulo231
sit233_reticulocountsi
sit2a0_bands
sit2a0_neutrophils
sit2a0_reticulocytes
Blood Gases sit020_baselineoxy
sit021_baselineoxy
sit181_o2sat
sit2a0_baselineoxy
Blood Smear
Blood Typing
Coagulation Test
Complete Blood Count sit020_hem
sit020_hematocrit
sit020_hemsi
sit020_hemunit
sit020_mch
sit020_mchc
sit020_mchcsi
sit020_mchcunit
sit020_mcv
sit020_mpv
sit020_platelets
sit020_plateletssi
sit020_plateunit
sit020_rbc
sit020_wbc
sit020_wellhem
sit020_wellhemsi
sit020_wellhemunit
sit021_hem
sit021_hematocrit
sit021_hemsi
sit021_hemunit
sit021_mch
sit021_mchc
sit021_mchcsi
sit021_mchcunit
sit021_mcv021
sit021_mpv
sit021_platelets021
sit021_plateletssi021
sit021_plateunit
sit021_rbc021
sit021_wbc021
sit021_wellhem
sit021_wellhemsi
sit021_wellhemunit
sit23_platunit_cv
sit233_hemunit_cv
sit233_platcount233
sit233_platcountsi233
sit233_redcount
sit233_whitecount231
sit2a0_hematocrit
sit2a0_mch
sit2a0_mchc
sit2a0_mcv
sit2a0_mpv
sit2a0_platelets
sit2a0_rbc
sit2a0_wbc
sit2a0_wellhem
sit2a0_wellhemsi
sit2a0_wellhemunit_cv
Comprehensive Metabolic Panel (CMP) sit020_biliunit
sit020_bun
sit020_bunsi
sit020_bununit
sit020_creatinine
sit020_creatininesi
sit020_creatunit
sit020_totbilirubin
sit020_totbilirubinsi
sit021_biliunit
sit021_bun021
sit021_bunsi
sit021_bununit
sit021_creatinine
sit021_creatininesi021
sit021_creatunit
sit021_totbilirubin
sit021_totbilirubinsi021
sit23_albumunit_cv
sit23_altunit_cv
sit23_astunit_cv
sit23_bilidirunit_cv
sit23_biliunit_cv
sit23_creatunit_cv
sit233_albumin
sit233_albuminsi
sit233_alt
sit233_altsi
sit233_ast
sit233_astsi
sit233_bilirubind
sit233_bilirubindsi
sit233_bilirubint
sit233_bilirubintsi
sit233_bun23
sit233_creatinine23
sit233_creatininesi23
sit233_hem23
sit233_hemsi23
sit233_otherpc
Enzyme sit23_ldhunit_cv
sit233_ldh231
sit233_ldhsi231
General
Hemoglobin Typing sit020_sicklediag
sit020_typea
sit020_typef
sit020_types
sit021_typea
sit021_typef
sit021_types
Iron sit23_ferrunit_cv
sit233_ferritin231
sit233_ferritinsi231
sit2a0_ferritin
Data ElementVariables
Serology sit233_hepa23
sit233_hepb23
sit233_hepbcore
sit233_hepbsurface
sit233_hepc
sit233_hiv
Data ElementVariables
Other sit200_lastmealti
Data ElementVariables
Abdomen sit101_abdomen10
sit181_abdomencurr
sit181_abdomenexpl
Anthropometrics sit020_height
sit020_heightsi
sit020_heightunit
sit020_weight
sit020_weightsi
sit020_weightunit
sit021_birthwt021
sit021_height
sit021_heightsi
sit021_heightunit
sit021_weight
sit021_weightsi
sit021_weightunit
sit101_headcir10
sit101_height10
sit101_weight10
sit181_height18
sit181_ofc
sit181_weight18
Cardiovascular sit101_arrhythmia10
sit101_murmur10
sit181_cardiocurr
sit181_cardioexpl
sit181_cvlinecurr
sit181_cvlineexpl
Extremities sit181_extremcurr
sit181_extremexpl
General sit020_handedness
sit021_handedness
sit101_chest10
sit101_handed10
sit101_neck10
sit101_skin10
sit101_spine10
sit181_appearance
sit181_appearancenote
sit181_cranialcurr
sit181_cranialexpl
sit181_gencurr
sit181_genexpl
sit181_gucurr
sit181_guexpl
sit181_heentcurr
sit181_heentexpl
sit181_lymphcurr
sit181_lymphexpl
sit181_rectumcurr
sit181_rectumexpl
sit181_reflexcurr
sit181_reflexexpl
sit181_sensorycurr
sit181_sensoryexpl
sit181_skincurr
sit181_skinexpl
sit181_tannercurr
sit181_tonecurr
sit181_toneexpl
sit2a0_handedness
Liver sit181_livercurr
sit181_liverexpl
sit181_livermeas
Reproductive
Respiratory sit181_lungscurr
sit181_lungsexpl
Spleen sit181_spleencurr
sit181_spleenexpl
sit181_spleenmeas
Vital signs sit020_diastolic
sit020_hidiabp
sit020_hisysbp
sit020_pulse
sit020_respiration
sit020_systolic
sit020_tempf
sit020_tempsi
sit020_tempunit
sit021_diastolic
sit021_hidiabp
sit021_hisysbp
sit021_pulse
sit021_respiration
sit021_systolic
sit021_tempf
sit021_tempsi
sit021_tempunit
sit101_diast10
sit101_pulse10
sit101_resp10
sit101_syst10
sit101_temp10
sit181_bpdia
sit181_bpsys
sit181_pulse18
sit181_resprate
sit181_temperature
Data ElementVariables
Antibiotics
Asthma
Blood Medication History
Cardiovascular
Compliance
Current Medication
Depression Medication History
Hydroxyurea sit000_recvdtreatment
sit130_recvdtreatment13
sit181_hydroxdt
sit181_hydroxyurea
sit181_hydroxyureadu
Medication sit020_folic
sit020_othermed1
sit020_othermed1sp
sit020_othermed2
sit020_othermed2sp
sit020_othermed3
sit020_othermed3sp
sit020_othermed4
sit020_othermed4sp
sit020_othermed5
sit020_othermed5sp
sit020_oxygen
sit020_penicillin
sit021_folic
sit021_othermed1
sit021_othermed1sp
sit021_othermed2
sit021_othermed2sp
sit021_othermed3
sit021_othermed3sp
sit021_othermed4
sit021_othermed4sp
sit021_othermed5
sit021_othermed5sp
sit021_oxygen
sit021_penicillin
sit181_allrdrugs
sit181_drugallergy
sit181_folate
sit181_folatedt
sit181_folatedu
sit181_pcnvk
sit181_pcnvkdt
sit181_pcnvkdu
sit200_med120
sit200_med1time
sit200_med220
sit200_med2time
sit200_med320
sit200_med3time
sit200_med420
sit200_med4time
sit200_medstoday
sit314_benadryl
sit314_claritin
sit314_nonegiven31
sit314_other31
sit314_tylenol
Neurologic Medication History
Pain sit020_effective
sit020_headachemeds
sit020_headachemedsabort
sit020_headachemedsprv
sit021_effective
sit021_headachemeds
sit021_headachemedsabort
sit021_headachemedsprv
sit2a0_dailyprev
sit2a0_effective
sit2a0_headachemed
sit2a0_medtaken1a
sit2a0_medtaken1b
sit2a0_medtaken2a
sit2a0_medtaken2b
sit2a0_medtaken3a
sit2a0_medtaken3b
sit2a0_medtaken4a
sit2a0_medtaken4b
sit2a0_medtaken5a
sit2a0_medtaken5b
sit2a0_medtaken6a
sit2a0_medtaken6b
SCD Medication sit181_desferal
sit181_desferaldt
sit181_desferaldu
Sildenafil
Supplements
Data ElementVariables
Blood Transfusion sit000_hasalloimmun
sit000_onbloodtrans
sit000_onbloodtrans
sit130_hasalloimmun13
sit314_acutechest
sit314_alt314
sit314_altdt314
sit314_altnd314
sit314_ast314
sit314_astdt314
sit314_astnd314
sit314_biliru314
sit314_bilirudt314
sit314_bilirund314
sit314_bun314
sit314_bundt314
sit314_bunnd314
sit314_creatin314
sit314_creatindt314
sit314_creatinnd314
sit314_ferritindt
sit314_ferritinnd
sit314_ferritinresult311
sit314_hemlevel
sit314_hemleveldt
sit314_hemlevelnd
sit314_hempct311
sit314_hempctdt
sit314_hempctnd
sit314_modtransamt311
sit314_modtransnd
sit314_modtransremove311
sit314_neurosymptoms
sit314_organfail
sit314_otherindicate
sit314_otherreason
sit314_painful
sit314_pheresis
sit314_priapism31
sit314_simpletransamt311
sit314_simpletransnd
sit314_surgery
sit314_transreason
sit314_urine314
sit314_urinedt314
sit314_urinend314
Chronic Transfusion
Transfusion Complications
Data ElementVariables
Achenbach Child Behavior Checklist (CBCL)
Bayley Scale of Infant and Toddler Development
Behavior Rating Inventory of Executive Function (BRIEF) sit221_bri22
sit221_control22
sit221_gec22
sit221_gender22
sit221_inconsistency22
sit221_inhibit22
sit221_initiate22
sit221_memory22
sit221_mi22
sit221_monitor22
sit221_negativity22
sit221_organization22
sit221_plan22
sit221_shift22
California Verbal Learning Test
Children's Memory Scale
Connor's Continuous Performance Test II
Delis-Kaplan Executive Function System (D-KEFS)
NeuroQOL Cognitive Function
Peabody Picture Vocabulary Test (PPVT)
Data ElementVariables
Adaptive Behavior Assessment System-II
Adverse Childhood Experience Questionnaire (ACE-Q)
Beery Developmental Test of Visual-Motor Integration
Benton Tactile Form Perception Test
Mini Mental Status Examination (MMSE)
Oral Verbal Fluency Test
Purdue Pegboard (SPA version)
Test of Everyday Attention (TEA)
Vineland Adaptive Behavior Summary
Wechsler Intelligence Scales sit210_block21
sit210_gender21
sit210_matrix21
sit210_similarities21
sit210_vocab21
Wechsler Memory Scale
Wisconsin Card Sorting Test
Woodcock-Johnson Revised, Tests of Achievement
Woodcock-Johnson, Revised, Tests of Cognitive Ability
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